Centre of Genomics and Policy Programme

(Director: B.M. Knoppers)

The Centre of Genomics and Policy of McGill University is one of the two independently funded research pillars of the Public Population Project in Genomics and Society (P3G). For 2012-2014, it will be composed of three platforms: 1. ELSI toolkit for the BIOBANKS 101 project; 2. ELSI tools for a new paediatric research platform; 3. ELSI-IT software and templates for access review committees. It actively collaborates in the BioSHaRE.EU, Canadian Partnership for Tomorrow and ENGAGE projects.


Maelstrom Research Programme

(Director: I. Fortier)

Located at the Research Institute of the McGill University Health Center (RI-MUHC), Maelstrom Research is an independent research programme created under the umbrella of the Public Population Project in Genomics and Society (P3G). Maelstrom Research's ultimate goal is to optimize the use of study data and facilitate collaboration amongst networks or consortia of studies. To accomplish this, it will provide the research community with a suite of methods, open-source software, and expert advice needed to support valid data comparison and harmonization across studies. This project brings together tools and expertise developed through the DataSHaPER and OBiBa projects and builds on collaborations established with the Canadian Longitudinal Study on Aging, the Canadian Partnership for Tomorrow, and BioSHaRE projects.


International Paediatric Research Programme

(led by Professor Denise Avard and supported by the Finding of Rare Disease Genes (FORGE) and the Maternal Infant Child and Youth Research Network (MICYRN))

The International Paediatric Research Programme aims to build a common platform regrouping the tools and resources for the facilitation, harmonization and management of ELSI issues in international paediatric research biobanking. P3G is hosting the platform on its website and act as facilitator to reach out to end-users who could benefit from centrally coordinated access to internationally harmonized policy tools.  A meeting launching of this initiative was hosted by P3G in Rotterdam on June 26, 2012.